Resilience Building Strategies in Autism Research: A Capabilities Resilience and Inclusion Model
Abstract
The lack of inclusion and engagement of people with Autism Spectrum Disorder (ASD) in the workplace is a key resilience building and sustainability challenge. Despite current research advocating for a range of models and practical interventions such as Community-Based Participatory Research (CBPR), ecosystem, strengths-based and nanotechnological approaches, the resilience problem faced by people with autism continues. Additionally, while Autism Work Peer Support Group (AWPSG) programs may deliver local governments’ cost-efficiencies and help in strategizing resource value maximization, the support strategies provided for people with autism remain inadequate. This resilience gap in autism research is addressed by drawing on twenty-four jobseekers and two Disability Employment Advisors’ focus group data from one Department of Work and Pensions branch, UK. The results comprised of survey responses in which participants highlighted the benefits of making friends, developing increased confidence in their skills, being optimistic about finding and retaining employment. These were used to develop the study’s key contribution: a practical model referred to as ‘Capabilities Resilience and Inclusion Model’ (CRIM). The model comprises a four-stage set of actions that provide
References
- Afif, A. (2024). The Role of Artificial Intelligence in Enhancing Identification of Autism in Children Through Motor Abnormalities. International Journal for Autism Challenges & Solution, 1(2), 18-29. DOI: https://doi.org/10.54878/fxg80s32
- Al Hamieli, M., & Habbal, F. (2024). Developing an AI-Driven Mobile Application for Early Autism Diagnosis and Classification. International Journal for Autism Challenges & Solution, 1(2), 63-81. DOI: https://doi.org/10.54878/dqbj6h14
- Ameis, S. H., Lai, M. C., Mulsant, B. H., & Szatmari, P. (2020). Coping, fostering resilience, and driving care innovation for autistic people and their families during the COVID-19 pandemic and beyond. Molecular Autism, 11(1), 61. DOI: https://doi.org/10.1186/s13229-020-00365-y
- Baldwin, S., Costley, D., & Warren, A. (2014). Employment activities and experiences of adults with high-functioning autism and Asperger’s Disorder. Journal of Autism and Developmental Disorders, 44, 2440–2449. DOI: https://doi.org/10.1007/s10803-014-2112-z
- Bardoel, E. A., Pettit, T. M., De Cieri, H., & McMillan, L. (2014). Employee resilience: An emerging challenge for HRM. Asia Pacific Journal of Human Resources, 52(3), 279-297. DOI: https://doi.org/10.1111/1744-7941.12033
- Bhat, R. S., Alkhudhairy, R., Alshehri, A. A., & Singh, R. (2024). Nanotechnology-an innovative approach to cope with the distinctive challenges linked with Autism Spectrum Disorder. International Journal for Autism Challenges & Solution, 1(1), 28-38. DOI: https://doi.org/10.54878/wys7ea23
- Bonanno, G.A. (2004). Loss, trauma, and human resilience: Have I underestimated the human capacity to thrive after extremely aversive events? American Psychologist, 59, 20-28. DOI: https://doi.org/10.1037/0003-066X.59.1.20
- Brosnan, M., Parsons, S., Good, J., & Yuill, N. (2016). How can participatory design inform the design and development of innovative technologies for autistic communities? Journal of Assistive Technologies, 10(2), 115-120. DOI: https://doi.org/10.1108/JAT-12-2015-0033
- Chalofsky, N., Cavallaro, L. (2013). A good living versus a good life: Meaning, purpose, and HRD. Advances in Developing Human Resources, 15(4), 331-340. DOI: https://doi.org/10.1177/1523422313498560
- Chalofsky, N. (1992). A unifying definition for the human resource development profession. Human Resource Development Quarterly, 3(2), 175-182. DOI: https://doi.org/10.1002/hrdq.3920030208
- Dawson, N. E., Parker, S. L., & Okimoto, T. G. (2024). Profiles of diversity and inclusion motivation: Toward an employee‐centered understanding of why employees put effort into inclusion and exclusion. Human Resource Management, 63(1), 45-66. DOI: https://doi.org/10.1002/hrm.22186
- Fletcher-Watson, S., Adams, J., Brook, K., Charman, T., Crane, L., Cusack, J., … Pellicano, E. (2019). Making the future together: Shaping autism research through meaningful participation. Autism, 23(4), 943-953. DOI: https://doi.org/10.1177/1362361318786721
- Ghanouni, P., Raphael, R., Seaker, L., & Casey, A. (2024). How to build resiliency in autistic individuals: an implication to advance mental health. BMC psychology, 12(1), 420. DOI: https://doi.org/10.1186/s40359-024-01916-1
- Gross, J.J. (2015). The extended process model of emotion regulation: Elaborations, applications, and future directions. Psychological Inquiry, 26, 130–137. DOI: https://doi.org/10.1080/1047840X.2015.989751
- Hedley, D., Uljarević, M., Cameron, L., Halder, S., Richdale, A., & Dissanayake, C. (2017a). Employment programmes and interventions targeting adults with autism spectrum disorder: a systematic review of the literature. Autism, 21(8), 929–941. DOI: https://doi.org/10.1177/1362361316661855
- Hedley, D., Cai, R., Uljarević, M., Wilmot, M., Spoor, J.R., Richdale, A., & Dissanayake, C. (2017b). Transition to work: Perspectives from the autism spectrum. Autism. Epub ahead of print 1 March 2017. DOI: https://doi.org/10.5465/AMBPP.2017.14563abstract
- Heselton, G.A., Rempel, G.R., & Nicholas, D.B. (2021). Integrating community participation with interpretative phenomenological analysis: Reflections on engaging the autism community. International Journal of Qualitative Methods, 20, 16094069211055575. DOI: https://doi.org/10.1177/16094069211055575
- Hillier, A., Fish, T., Cloppert, P., & Beversdorf, Q.D. (2007). Outcomes of a social and vocational skills support group for adolescents and young adults on the autism spectrum. Focus on Autism and other Developmental Disabilities, 22(2), 107-115. DOI: https://doi.org/10.1177/10883576070220020201
- Hillier, J. (2014). Performances and performativities of resilience. In Evolutionary governance theory: theory and applications (pp. 167-183). Cham: Springer International Publishing. DOI: https://doi.org/10.1007/978-3-319-12274-8_12
- Howlin, P., Alcock, J., & Burkin, C. (2005). An 8-year follow- up of a specialist supported employment service for high- ability adults with autism or Asperger syndrome. Autism, 9, 533–549. DOI: https://doi.org/10.1177/1362361305057871
- Israel, B.A., Schulz, A.J., Coombe, C.M., Parker, E.A., Reyes, A.G., Rowe, Z., & Lichtenstein, R.L. (2019). Community-based participatory research. Urban health, 272(2), 272-282. DOI: https://doi.org/10.1093/oso/9780190915858.003.0029
- Jivraj, J., Sacrey, L.A., Newton, A., Nicholas, D., & Zwaigenbaum, L. (2014). Assessing the influence of researcher-partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: a scoping review. Autism, 18(7), 782-793. DOI: https://doi.org/10.1177/1362361314539858
- Johnson, K. R. (2022). Using a strength–based approach to improve employment opportunities for individuals with autism spectrum disorder. New Horizons in Adult Education and Human Resource Development, 34(1), 16-25. DOI: https://doi.org/10.1002/nha3.20321
- Lai, M.C., & Szatmari, P. (2019). Resilience in autism: Research and practice prospects. Autism, 23(3), 539–541.Luthar, S.S., & Cicchetti, D. (2000). The construct of resilience: implications for interventions and social policies. Development and psychopathology, 12(4), 857–885. DOI: https://doi.org/10.1017/S0954579400004156
- Madden, R., & Coffey, L. (2025). Experiences of Empathy‐Based Stress Among Care Staff Supporting Children and Adolescents with Intellectual Disabilities and/or Autism in Residential and Respite Services: A Qualitative Exploration. Health & Social Care in the Community, 2025(1), 9828118. DOI: https://doi.org/10.1155/hsc/9828118
- McCurdy, E.E., & Cole, C.L. (2014). Use of a Peer Support Intervention for Promoting Academic Engagement of Students with Autism in General Education Settings. Journal of Autism and Developmental Disorders, 44, 883-893. DOI: https://doi.org/10.1007/s10803-013-1941-5
- Minkler, M., & Wallerstein, N. (Eds.). (2010). Community-Based Participatory Research for Health: From Process to Outcomes (2nd ed.). San Francisco, CA: Jossey-Bass.
- Mostafa, M. (2008). An architecture for autism: Concepts of design intervention for the autistic user. International Journal of Architectural Research, 2(1), 189-211.
- Nicolaidis, C., & Raymaker, D.M. (2015). Community based participatory research with communities defined by race, ethnicity, and disability: Translating theory to practice. In H. Bradbury (Ed.), The SAGE Handbook of Action Research (pp. 167-179). London, UK: SAGE.Nicolaidis, C., Raymaker, D., McDonald, K., Dern, S., Ashkenazy, E., Boisclair, C., … DOI: https://doi.org/10.4135/9781473921290.n17
- Nicolaidis, C., Raymaker, D.M., Ashkenazy, E., McDonald, K.E., Dern, S., Baggs, A.E.V., … Boisclair, W.C. (2015a). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. Autism, 19(7), 824-831. DOI: https://doi.org/10.1177/1362361315576221
- Nicolaidis, C., Raymaker, D., Katz, M., Oschwald, M., Goe, R., Leotti, S., … Millin, M. (2015b). Community-based participatory research to adapt health measures for use by people with developmental disabilities. Progress in Community Health Partnerships: Research, Education, and Action, 9(2), 157-170.
- Nicolaidis, C., Raymaker, D., Katz, M., Oschwald, M., Goe, R., Leotti, S., … Millin, M. (2015b). Community-based participatory research to adapt health measures for use by people with developmental disabilities. Progress in Community Health Partnerships: Research, Education, and Action, 9(2), 157-170. DOI: https://doi.org/10.1353/cpr.2015.0037
- Nicholas, D.B., Attridge, M., Zwaigenbaum, L., & Clarke, M. (2015) Vocational support approaches in autism spectrum disorder: a synthesis review of the literature. Autism, 19, 235-245. DOI: https://doi.org/10.1177/1362361313516548
- Nicholas, D.B., Mitchell, W., Dudley, C., Clarke, M., & Zulla, R. (2018). An ecosystem approach to employment and autism spectrum disorder. Journal of Autism and Developmental Disorders, 48, 264–275. DOI: https://doi.org/10.1007/s10803-017-3351-6
- Nooh, S., & Nooh, S. (2025). Improving Social Communication Level for Mildly Autistic Children Using Video Call-Based Mobile Application Game. International Journal for Autism Challenges & Solution, 2(1), 12-20. DOI: https://doi.org/10.54878/czkhwg95
- Parsons, S., Millen, L., Garib-Penna, S. & Cobb, S. (2011). Participatory design in the development of innovative technologies for children and young people on the autism spectrum: the COSPATIAL project. Journal of Assistive Technologies, 5(1), 29-34. DOI: https://doi.org/10.5042/jat.2011.0099
- Pellicano, E., Lawson, W., Hall, G., Mahony, J., Lilley, R., Heyworth, M., ... & Yudell, M. (2022). “I knew she'd get it and get me”: Participants' perspectives of a participatory autism research project. Autism in Adulthood, 4(2), 120-129. DOI: https://doi.org/10.1089/aut.2021.0039
- Racadio, R., Rose, E.J., & Kolko, B.E. (2014). Research at the margin: Participatory design and community based participatory research. ACM International Conference Proceeding Series, 2, 49-52. DOI: https://doi.org/10.1145/2662155.2662188
- Raymaker, D.M., McDonald, K.E., Ashkenazy, E., Gerrity, M., Baggs, A.M., Kripke, C., & Nicolaidis, C. (2017). Barriers to healthcare: Instrument development and comparison betIen autistic adults and adults with and without other disabilities. Autism, 21(8), 972-984. DOI: https://doi.org/10.1177/1362361316661261
- Roux, A.M., Shattuck, P.T., Rast, J.E., Rava, J.A., & Anderson, K.A. (2015). National Autism Indicators Report: Transition into Young Adulthood. Philadelphia, PA: Life Course Outcomes Research Program, A.J. Drexel Autism Institute, Drexel University.
- Shochet, I.M., Saggers, B.R., Carrington, S.B., Orr, J.A., Wurfl, A.M., Duncan, B.M., & Smith, C.L. (2016). The Cooperative Research Centre for Living with Autism (Autism CRC) conceptual model to promote mental health for adolescents with ASC. Clinical Child and Family Psychology Review, 19, 94–116. DOI: https://doi.org/10.1007/s10567-016-0203-4
- Szatmari, P. (2018). Risk and resilience in autism spectrum disorder: A missed translational opportunity? Developmental Medicine & Child Neurology, 60, 225–229. DOI: https://doi.org/10.1111/dmcn.13588
- Tomczak, M. T., & Ziemiański, P. (2023). Autistic employees’ technology-based workplace accommodation preferences survey—Preliminary findings. International Journal of Environmental Research and Public Health, 20(10), 5773. DOI: https://doi.org/10.3390/ijerph20105773
- Tomczak, M. T., Mpofu, E., & Hutson, N. (2022). Remote work support needs of employees with Autism Spectrum Disorder in Poland: Perspectives of individuals with autism and their coworkers. International journal of environmental research and public health, 19(17), 10982. DOI: https://doi.org/10.3390/ijerph191710982
- Tomczak, M. T. (2021). Employees with autism spectrum disorders in the digitized work environment: Perspectives for the future. Journal of disability policy studies, 31(4), 195-205. DOI: https://doi.org/10.1177/1044207320919945
- Tomczak, M. T., Szulc, J. M., & Szczerska, M. (2021). Inclusive communication model supporting the employment cycle of individuals with autism spectrum disorders. International journal of environmental research and public health, 18(9), 4696. DOI: https://doi.org/10.3390/ijerph18094696
- Vincent, J., & Fabri, M. (2022). The ecosystem of competitive employment for university graduates with autism. International Journal of Disability, Development and Education, 69(5), 1823-1839. DOI: https://doi.org/10.1080/1034912X.2020.1821874
- Waisman-Nitzan, M., Gal, E., & Schreuer, N. (2019). Employers’ perspectives regarding reasonable accommodations for employees with autism spectrum disorder. Journal of Management & Organization, 25(4), 481-498. DOI: https://doi.org/10.1017/jmo.2018.59
- Weiss, J. A., Tint, A., Paquette-Smith, M., & Lunsky, Y. (2016). Perceived self-efficacy in parents of adolescents and adults with autism spectrum disorder. Autism, 20(4), 425-434. DOI: https://doi.org/10.1177/1362361315586292
- Wong, P. S., Donelly, M., Neck, P. A., & Boyd, B. (2018). Positive autism: Investigation of workplace characteristics leading to a strengths-based approach to employment of people with autism. Revista de Management Comparat International, 19(1), 15-30. DOI: https://doi.org/10.24818/RMCI.2018.1.15
- Yan, C. O. (2025). Employment Discrimination Among Individuals with Autism Spectrum Disorders: A Systematic Review and Meta-Analysis. International Journal of Interdisciplinary Social & Community Studies, 20(1). DOI: https://doi.org/10.18848/2328-6261/CGP/v25i01/1-23
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